What’s missing?

If I really believe in something, I’ve never been one to just sit back and hope that someone else comes up with a solution.  Although it might take me time to get over my demons and take action, that “something” is always in the back of my mind.  Like this blog…I’ve felt pretty isolated with this condition for most of my life.  I’d let people in on the “big secret” every now and then, but it’s been hard to keep facing that demon. I’d been thinking about starting this blog for a long time….and I finally did it.  And it’s been so rewarding to hear from other people via this blog.

I believe that there’s value in sharing my story.  I believe there’s value for all of us sharing our stories. We’re not alone.  And we can kick this.

So, lately, hubby and I have actually been toying with the idea of creating a website.  There are a few great websites out there with vaginismus information, and there’s certainly more information out there than when I first started Googling ten years ago.  But it’s disheartening to know that there are still people out there who don’t have solutions, who are suffering, who don’t even know what this condition is that they have, and who don’t know how or where to get help.  That’s not cool with me.

I think it’s absolutely crucial that we put more information about this condition out there into the wide world of the web.  So, I’m asking for your help.  What information do you feel is missing?  Some thoughts we’ve had:

- comprehensive list of practitioners who specialize in or can help with vaginismus (pelvic physiotherapists, counselors, OBGYN’s etc.)

- up-to-date list of and links to different dilators, literature and other vaginismus tools/information

- links to vaginismus in the media

- shared personal stories in the form of an anonymous podcast or multi-authored blog

What would help you? Please post a comment below, or email me directly from my Contact page.

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2 Responses to What’s missing?

  1. Vanessa says:

    Well I don’t really have any suggestions to contribute but I thank you for having this blog. I have been thinking seriously of sharing my story for empowerment and to help those who are suffering too. I am heartened to see that your hubby is on board with the website idea. My hubby is supportive but private so I have to be careful how I express myself online.
    ~Vanessa

  2. Vashalla says:

    I really like the idea of a website containing a collection of personal anonymous stories of women’s challenges, fears, and triumphs over vaginismus. It’s such a powerful thing to read others’ stories and be able to relate to them and to realize that you really are not alone. Since joining the Yahoo! support group not even a week ago, I already feel so much more optimistic from just the few stories I’ve heard from other women.

    I also like the idea of a comprehensive list of practitioners who specialize in treating vaginismus. I would love to find an OB/GYN in my area that at least knows what it is, but haven’t the foggiest clue where to start. At this point, there probably isn’t much of a starting point, other than calling every OB/GYN in town. I would hazard to guess that most women are in the same predicament.

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