If I really believe in something, I’ve never been one to just sit back and hope that someone else comes up with a solution. Although it might take me time to get over my demons and take action, that “something” is always in the back of my mind. Like this blog…I’ve felt pretty isolated with this condition for most of my life. I’d let people in on the “big secret” every now and then, but it’s been hard to keep facing that demon. I’d been thinking about starting this blog for a long time….and I finally did it. And it’s been so rewarding to hear from other people via this blog.
I believe that there’s value in sharing my story. I believe there’s value for all of us sharing our stories. We’re not alone. And we can kick this.
So, lately, hubby and I have actually been toying with the idea of creating a website. There are a few great websites out there with vaginismus information, and there’s certainly more information out there than when I first started Googling ten years ago. But it’s disheartening to know that there are still people out there who don’t have solutions, who are suffering, who don’t even know what this condition is that they have, and who don’t know how or where to get help. That’s not cool with me.
I think it’s absolutely crucial that we put more information about this condition out there into the wide world of the web. So, I’m asking for your help. What information do you feel is missing? Some thoughts we’ve had:
- comprehensive list of practitioners who specialize in or can help with vaginismus (pelvic physiotherapists, counselors, OBGYN’s etc.)
- up-to-date list of and links to different dilators, literature and other vaginismus tools/information
- links to vaginismus in the media
- shared personal stories in the form of an anonymous podcast or multi-authored blog
What would help you? Please post a comment below, or email me directly from my Contact page.